A few people wanted a web site to get updates instead of e-mail, so attached is the e-mail string from the last several days. (newest to oldest so if you want to read it chrnologically you have to go to the bottom)
3-14-12
so no news is good news. Today has been just a nice day of rest for Dee. We have gone for short romantic walks together up and down the hallway of the hospital and have had plenty of time to chat. The best part of our day is having the nurse come into the room every couple of hours and ask 'you go poo poo?'.
This will be the last update until something changes. The current plan is for Dee to continue slowly progressing with her IV antibiotics. If her condition takes a dramatic turn positively or negatively, we will be sure to send out a note.
Thanks again for everyone's care and concern. It means a lot to both Dee and I. Peace.
3-13-12
Kind of a crazy day. SOS arrived at our hospital at 12:30 am. They got us all packed up and to the airport by 2:00 am. We arrived in Beijing and made it to the hospital where we reviewed the CT scans and ultrasounds from Changchun with the on-site surgeon at 5 am. The plan was to have a color-contrast CT scan that afternoon and surgery the next day.
After checking into our room at 7 am, we both took a nap. Dee's current room is a 'bit' nicer than the one in CC as it has a bathroom with a shower and a chair that pulls out into a bed for her husband. It is a refreshing change to be in a hospital that feels like a western hospital and everyone can speak English.
So the good news/bad news. Dee is doing very well. Her temperature and blood pressure are normal. Her whiteblood cell count is less than 10 (in the normal range). Basically her body is no longer fighting the infection. Because she is so stable, the doctor does not want to rush into performing the surgery to remove the growth. Because the growth is near her colon, he wants to have as much material removed by the body as possible before he surgically removes the remaining mass. That's all good news. The bad news is that this means Dee would be here in Beijing for another 7-10 days just sitting in a bed receiving her IV 3X a day (which is exactly what she was doing in CC). If she is still stable at the end of the 7-10 days, they would send her home to take oral antibiotics for a month and then schedule the surgery to remove whatever is left of the mass (and her appendix if necessary).
Things to pray for and be thankful for:
-patience for Dee and I to accept the waiting if this is necessary.
-discernment to know what questions to ask and what course of treatment to pursue/demand.
-Thanks to Haroon who continues to be our sounding board for treatment options in China (Heather and Marie stateside).
-Thanks to all the folks who have offered physical, moral, and prayer support over the last few days.
-Thanks to our kids for rolling with the punches and not freaking out when life throws them a curve ball.
Funny moments:
-When the kids were asked where they would like to go for the next couple of days while mom and dad took a holiday in Beijing, they all thought about it for a little while and made their decisions. Only Caleb was bold enough to listen to his heart. His answer: "Pizza hut"
-When leaving the hospital in CC, the doctor asked Dee if she would be willing to have a catheter for her comfort during the flight to Beijing. Dee let the doctor know that for the doctor's comfort, he should not suggest giving her a catheter again.
3-12-12
Had another ultrasound this afternoon at 1:00. After reviewing the results, the doctor concluded that surgery will be required. The 'mass' near Dee's colon has not changed size at all. Dee's whiteblood count had come down from 17 last Friday to 11 today (less than 10 is considered normal). The doctor said she wanted to wait 2 more days until the WBC was under 10 and then surgically remove the mass (and the appendix if necessary).
After consulting with a few people, we decide to call SOS (JCI international health support team). They were a little more concerned about the mass. They have not seen any of the charts, but were concerned that if the mass was made up of pus, then if the mass were to break open, Dee would go into septic shock. The chances of this happening are low, but if it happens its not good. So they suggested getting Dee to Beijing tonight. Unfortunately all the commercial flights would not work, so we suggested flying out in the morning. They suggested flying a private plane from Beijing to Changchun to pick up Dee and fly her back tonight.
So that's where we are at. I have everything packed for Dee and I to get into an ambulance at midnight and go to a plane where they will be able to handle an emergency surgery in flight if necessary. (We're praying for 'not necessary')
Annabel graciously brought dinner for our family tonight and ended up taking all of our kids home with her. The current plan is to have Emily stay with Britta, Nathan with Wojo's, Caleb with Lepinette's, and Jonathan with the Nelsons. None of them know this yet, but that will be the next set of phone calls.
Dee is still in very good spirits and appreciated visits from Lisa and Ambreen and Haroon at the hospital today. Hongyang and Fu Jia were also very helpful with helping us navigate the Chinese medical system.
The next update will be from Beijing tomorrow. As always, Dee and I are in need of everyone's prayers and thanks again for all the support.
3-11-12
Folks,
I've talked to most of you at some point over the last several days, so I thought I would just send out 1 e-mail to get everyone up to speed. For some this will be mostly new and for some there will be no new information here.
This past Monday, Dee started to complain about a tender abdomen. We had Indian food for supper, so this was easy to explain. On Tuesday the soreness was worse, but Dee hoped that Wednesday would be better. By the end of Thursday she became convinced that she was not getting better on her own.
On Friday morning at 8 am she went to the hospital by culture square (wen hua chang yi yuan?). They ran a lot of ultrasound and CT scans. After they reviewed the scans, they determined she had a 'perforated appendix' (although I'm still not entirely sure what that means). They did not have any rooms at this hospital so they moved her to hospital #3 which is a short walk from our apartment (no small amount of grace involved here as I can easily walk there and back several times a day). By 8 pm, she was admitted to her room. She was exhausted, but at least she was now receiving antibiotics for the infection in her abdomen.
On Saturday they moved her to a new room and continued to give her antibiotics both orally and through the IV. When I was with her today, she continues to improve quite a lot although her movement is still very slow and deliberate.
Monday, she should receive a review of her diagnosis and a recommendation for a plan of action. We will hopefully have a translator with us this time so we should have a better understanding of what they are recommending. At that point we'll have to make some decisions on what to do next. If surgery is required, we'll have to decide when and where and and and. . .
So Dee and I might need to ask for some favors in the coming days/weeks. Many of you have already offered your support and we consider ourselves blessed to be surrounded by friends who are willing to give of themselves to help. We would also appreciate your prayers as we navigate through this event in our lives together. And I apologize for under-communicating these past few days. Our family has a long tradition of under-reacting to medical situations. It's not that we don't covet your friendship and your concern, its that we were not really very concerned until much later than we should have been. This is the same defect that led us 2 years ago into telling our daughter to 'suck it up' for 10 days before we brought her to the hospital and found out she had broken her foot in 2 places.
So things to be thankful for:
-Dee and I are grateful to Wu shi fu (our driver) and his wife for spending all day Friday and most of Saturday with Dee and helping Dee navigate through the myriad of tests and requests for information. Their English is pretty limited, but the care and concern of their actions spoke clearly enough.
-Visitors. Even when Dee is knocked out on a hospital bed, she still likes to talk. So thanks to Catherine, Hongyang, Jessica (and her friend Emily), and Louisa for stopping by to say hello. (It was also nice being able to spend time praying with Jessica and Emily.)
-All the people in the hospital. It is interesting how going to the hospital is a team sport here in Changchun. Many of Dee's neighbors have helped her go to the restroom, held onto used medical equipment when the nurse's hands were full, and generally helped explain how to get things done correctly. They also seemed impressed when I told them that I made fried eggs and broccoli for the kids for supper on Friday night.
Things to laugh about:
-Only one so far. When I told Caleb that we were hoping mom would be coming home from the hospital Monday, he only had one question. 'Do you think she'll bring us presents?'. Apparently the kids think mom is away on holiday or something. I'm hoping age will bring a little more sensitivity to our kids.